Developmental Delay by Sandra Sather
Updated April 2014
A legacy fact sheet from NICHCY
If you’re reading this, perhaps you’re concerned about your child’s development. We’re glad you’re here, because there are many immediate things you can do to help your son or daughter. First, know thatthere’s help available to find out just what the difficulties are, if any, and address those difficulties.
The good news is that this help is usually free, and it’s available in every state. Keep reading if you’d like to know more.
The Developing ChildThink of all the skills that children have to learn when they come into the world: smiling, turning over, responding to people, communicating, eating solid food, crawling, standing, and on and on. We expect these skills to emerge naturally over time and know more or less when they should. At 3 months, Susana will probably be doing this, at 4 months, she’ll be doing that. By a year, well, she’ll be tottering around, getting into everything.
The time-table for skills to emerge is commonly called the developmental milestones. What’s considered normal development is described rather broadly. That’s because we know that children don’t learn skills at the same pace. Two different children born on the same day may learn the same skill months apart, and both can be considered “on schedule.” It’s when skills don’t emerge as expected, more or less on that broad schedule, that parents and caregivers may become concerned.
What to do? First, you may want to talk with your pediatrician about your child’s development.
Back to top
Talking to Your PediatricianDon’t be surprised if the pediatrician tells you not to worry, to be patient, to give your child more time to develop. Often, that’s what parents hear, especially in the early stages of investigating their child’s seeming delays. And it’s often true. Children develop at different rates; the pediatrician is well aware that many children show sudden bursts in development rather than slow, steady growth.
On the other hand, your pediatrician may recommend that a developmental screening be conducted. Its purpose is to see if, yes, your child is experiencing adevelopmental delay. The screening is a quick, general measure of your child’s skills and development. It’s not detailed enough to make a diagnosis, but its results show whether or not a child should be referred for a more in-depth developmental evaluation.
Back to top
Developmental EvaluationThe developmental evaluation should be conducted by a highly trained professional who can use the results to create a profile of your child’s strengths and weaknesses. The evaluation needs to look at five developmental areas. Those areas are:
Things to KnowStates have an affirmative obligation to help children who are experiencing a developmental delay in one or more areas.
Through the Child Find system that states operate, developmental screenings and developmental evaluations are typically provided free of charge to families.
If you’re concerned about your child’s development, talk to your child’s pediatrician, who can refer you to the Child Find system in your area.
Early intervention services are meant for children under the age of three. They typically are provided to eligible families either free of charge or on a sliding payment scale that’s determined by the family’s income.
You can find out how to access early intervention services in your area by talking to your child’s pediatrician, calling a local hospital, or finding your state’s contact for early intervention at the Early Childhood Technical Assistance Center. Call the agency and ask how to contact your local early intervention program.
Special education services are meant for children over the age of three. Services are provided to eligible children free of charge through the public school system. If your child has passed his or her third birthday and you’re concerned about a developmental delay or disability, call your local school (even if your child isn’t enrolled there) and ask how and where to have your child evaluated under IDEA, our nation’s special education law.
Back to top
IDEA’s Definition of Developmental DelayIDEA is the Individuals with Disabilities Education Act. Through IDEA, early intervention services and special education services are made available to our nation’s children. Not surprisingly, IDEA includes a definition of developmental delay, which may be useful to know. Here it is:
Child with a disability for children aged three through nine (or any subset of that age range, including ages three through five), may…include a child--
(1) Who is experiencing developmental delays as defined by the State and as measured by appropriate diagnostic instruments and procedures in one or more of the following areas: Physical development, cognitive development, communication development, social or emotional development, or adaptive development; and
(2) Who, by reason thereof, needs special education and related services. [34 CFR §300.8(b)]
It’s a good idea to find out if your state has added details to this definition of developmental delay. States are allowed to do so, if they choose. They also decide on the age range of children with whom the term may be used (3-5, 3-9, or any subset between 3-9). Your local school or early intervention program should be able to tell you the definition of developmental delay that’s used in your area.
You can also visit the Early Childhood Technical Assistance Center (mentioned earlier) and find out how your state defines developmental delay, as well as the criteria of eligibility for services to young children, birth through 2 years of age, and their families. The ECTA Center makes this information available online at:
http://ectacenter.org/topics/earlyid/idspecpops.asp#devdelay
It may be helpful to know that, under IDEA:
Resources for YouIt’s very helpful to read more about developmental delay. This has been just a brief overview, with pointers to loads of additional info and support, listed below.
Child development.
All about…from the CDC, the Centers for Disease Control and Prevention.
http://www.cdc.gov/ncbddd/childdevelopment/index.html
Developmental screening.
From CDC, the Centers for Disease Control and Prevention.
http://www.cdc.gov/ncbddd/childdevelopment/screening.html
Developmental milestones.
From CPIR’s own site.
http://www.parentcenterhub.org/repository/milestones/
What is developmental delay?
From How Kids Develop.
http://www.howkidsdevelop.com/developDevDelay.html
Developmental delay.
From the Encyclopedia of Children’s Health.
http://www.healthofchildren.com/D/Developmental-Delay.html
Developmental delays.
From Keep Kids Healthy.
http://www.keepkidshealthy.com/welcome/conditions/developmentaldelays.html
First Signs.
All about early detection of developmental delays and disabilities, especially autism.
http://www.firstsigns.org/
Connect with other parents.
Interested in talking to other parents whose children have developmental delays? Try Parent to Parent. They’ll connect you with other parents like yourself for support and exchange.
http://www.p2pusa.org
Connect with the disability community and parent expertise.
Every state has a Parent Training and Information Center, known as the PTI. Some states have several. If you are looking to connect with state and local resources, or have questions about services and parent rights, talk to your PTI. Find the PTI for your state by visiting our Find Your Parent Center page, at:
http://www.parentcenterhub.org/find-your-center/
Back to top
7
Home | About Us | Resources | Our Advisors | Contact Us
© 2014 Center for Parent Information and Resources. All Rights Reserved.
A legacy fact sheet from NICHCY
If you’re reading this, perhaps you’re concerned about your child’s development. We’re glad you’re here, because there are many immediate things you can do to help your son or daughter. First, know thatthere’s help available to find out just what the difficulties are, if any, and address those difficulties.
The good news is that this help is usually free, and it’s available in every state. Keep reading if you’d like to know more.
- The developing child
- Talking to your pediatrician
- Developmental evaluation
- Things to know
- IDEA’s definition of “developmental delay”
- Resources for you
The Developing ChildThink of all the skills that children have to learn when they come into the world: smiling, turning over, responding to people, communicating, eating solid food, crawling, standing, and on and on. We expect these skills to emerge naturally over time and know more or less when they should. At 3 months, Susana will probably be doing this, at 4 months, she’ll be doing that. By a year, well, she’ll be tottering around, getting into everything.
The time-table for skills to emerge is commonly called the developmental milestones. What’s considered normal development is described rather broadly. That’s because we know that children don’t learn skills at the same pace. Two different children born on the same day may learn the same skill months apart, and both can be considered “on schedule.” It’s when skills don’t emerge as expected, more or less on that broad schedule, that parents and caregivers may become concerned.
What to do? First, you may want to talk with your pediatrician about your child’s development.
Back to top
Talking to Your PediatricianDon’t be surprised if the pediatrician tells you not to worry, to be patient, to give your child more time to develop. Often, that’s what parents hear, especially in the early stages of investigating their child’s seeming delays. And it’s often true. Children develop at different rates; the pediatrician is well aware that many children show sudden bursts in development rather than slow, steady growth.
On the other hand, your pediatrician may recommend that a developmental screening be conducted. Its purpose is to see if, yes, your child is experiencing adevelopmental delay. The screening is a quick, general measure of your child’s skills and development. It’s not detailed enough to make a diagnosis, but its results show whether or not a child should be referred for a more in-depth developmental evaluation.
Back to top
Developmental EvaluationThe developmental evaluation should be conducted by a highly trained professional who can use the results to create a profile of your child’s strengths and weaknesses. The evaluation needs to look at five developmental areas. Those areas are:
- Physical development (fine motor skills, gross motor skills)
- Cognitive development (intellectual abilities)
- Communication development (speech and language)
- Social or emotional development (social skills, emotional control)
- Adaptive development (self-care skills)
- Assistive technology (devices a child might need)
- Audiology or hearing services
- Speech and language services
- Counseling and training for a family
- Medical services
- Nursing services
- Nutrition services
- Occupational therapy
- Physical therapy
- Psychological services
Things to KnowStates have an affirmative obligation to help children who are experiencing a developmental delay in one or more areas.
Through the Child Find system that states operate, developmental screenings and developmental evaluations are typically provided free of charge to families.
If you’re concerned about your child’s development, talk to your child’s pediatrician, who can refer you to the Child Find system in your area.
Early intervention services are meant for children under the age of three. They typically are provided to eligible families either free of charge or on a sliding payment scale that’s determined by the family’s income.
You can find out how to access early intervention services in your area by talking to your child’s pediatrician, calling a local hospital, or finding your state’s contact for early intervention at the Early Childhood Technical Assistance Center. Call the agency and ask how to contact your local early intervention program.
Special education services are meant for children over the age of three. Services are provided to eligible children free of charge through the public school system. If your child has passed his or her third birthday and you’re concerned about a developmental delay or disability, call your local school (even if your child isn’t enrolled there) and ask how and where to have your child evaluated under IDEA, our nation’s special education law.
Back to top
IDEA’s Definition of Developmental DelayIDEA is the Individuals with Disabilities Education Act. Through IDEA, early intervention services and special education services are made available to our nation’s children. Not surprisingly, IDEA includes a definition of developmental delay, which may be useful to know. Here it is:
Child with a disability for children aged three through nine (or any subset of that age range, including ages three through five), may…include a child--
(1) Who is experiencing developmental delays as defined by the State and as measured by appropriate diagnostic instruments and procedures in one or more of the following areas: Physical development, cognitive development, communication development, social or emotional development, or adaptive development; and
(2) Who, by reason thereof, needs special education and related services. [34 CFR §300.8(b)]
It’s a good idea to find out if your state has added details to this definition of developmental delay. States are allowed to do so, if they choose. They also decide on the age range of children with whom the term may be used (3-5, 3-9, or any subset between 3-9). Your local school or early intervention program should be able to tell you the definition of developmental delay that’s used in your area.
You can also visit the Early Childhood Technical Assistance Center (mentioned earlier) and find out how your state defines developmental delay, as well as the criteria of eligibility for services to young children, birth through 2 years of age, and their families. The ECTA Center makes this information available online at:
http://ectacenter.org/topics/earlyid/idspecpops.asp#devdelay
It may be helpful to know that, under IDEA:
- Your state may not require that your local school district also adopt and use the term developmental delay in working with children.
- If your local school district decides to use the term, it must use the same definition and age range as the state does.
- Your local school district may not use the term at all if your state has chosen not to use the term.
Resources for YouIt’s very helpful to read more about developmental delay. This has been just a brief overview, with pointers to loads of additional info and support, listed below.
Child development.
All about…from the CDC, the Centers for Disease Control and Prevention.
http://www.cdc.gov/ncbddd/childdevelopment/index.html
Developmental screening.
From CDC, the Centers for Disease Control and Prevention.
http://www.cdc.gov/ncbddd/childdevelopment/screening.html
Developmental milestones.
From CPIR’s own site.
http://www.parentcenterhub.org/repository/milestones/
What is developmental delay?
From How Kids Develop.
http://www.howkidsdevelop.com/developDevDelay.html
Developmental delay.
From the Encyclopedia of Children’s Health.
http://www.healthofchildren.com/D/Developmental-Delay.html
Developmental delays.
From Keep Kids Healthy.
http://www.keepkidshealthy.com/welcome/conditions/developmentaldelays.html
First Signs.
All about early detection of developmental delays and disabilities, especially autism.
http://www.firstsigns.org/
Connect with other parents.
Interested in talking to other parents whose children have developmental delays? Try Parent to Parent. They’ll connect you with other parents like yourself for support and exchange.
http://www.p2pusa.org
Connect with the disability community and parent expertise.
Every state has a Parent Training and Information Center, known as the PTI. Some states have several. If you are looking to connect with state and local resources, or have questions about services and parent rights, talk to your PTI. Find the PTI for your state by visiting our Find Your Parent Center page, at:
http://www.parentcenterhub.org/find-your-center/
Back to top
7
Home | About Us | Resources | Our Advisors | Contact Us
© 2014 Center for Parent Information and Resources. All Rights Reserved.